CMT Support Organizations
Several organizations support CMTers. The USA National Health Information Center NHIC provides web pages on other health organizations. Last updated: 10/12/1997.
The following organizations provided information and support to CMTers
- Charcot-Marie-Tooth Association (CMTA), a CMT support organization
- Charcot-Marie-Tooth International (CMT International), a CMT support organization
- Charcot-Marie-Tooth International (CMT International) of the United Kingdom and the Glaxo Neurological Centre, a CMT support organization
- Charcot-Marie-Tooth International (CMT International) of South Wales, a CMT support organization
- L'association CMT France, a CMT support organization
- Charcot-Marie-Tooth Association of Australia (CMTAA), a CMT support organization
- There are multiple autonomous cooperating Muscular Dystrophy Associations (MDA) around the world. While these associations cooperate, they are independent entities. CMT is not a form of muscular dystrophy but MDAs charters' covers all neuromuscular diseases, including CMT.
- Vereniging Spierziekten Nederland (VSN), a CMT support organization
- CMT-Belgium, a CMT support organization
- Muscle Power, "a voluntary organization for people with neuromuscular impairment"
Other information
Charcot-Marie-Tooth Association (CMTA)
Previously called The National Foundation for Peroneal Muscular Atrophy (NFPMA)
Address:
Crozer Mills Enterprise Center
601 Upland Avenue
Upland, PA 19015 USA
Telephone 610-499-7486 (note new area code)
Founder: Howard K. Shapiro, PhD, biochemist
President: Diane M. Freaney